Directory of Diabetes Organizations
This directory lists Government agencies and voluntary associations that provide diabetes information and resources. Some of these diabetes organizations offer educational materials and support to people with diabetes and the general public, while others serve primarily health care professionals.
New Diabetes Partner
Joslin Diabetes Center, a teaching and research affiliate of Harvard Medical School, is a one-of-a-kind institution on the front lines of the world epidemic of diabetes, leading the battle to conquer diabetes in all of its forms through cutting-edge research and innovative approaches to clinical care and education.
One Joslin Place,
Boston, MA 02215
Phone: 1-800-JOSLIN or 1-800-567-5461 or 1-617-732-2400
Email: Contact Us
Internet: www.joslin.org
Donate: http://www.joslin.org/giving
Joslin Diabetes Center, a teaching and research affiliate of Harvard Medical School, is a one-of-a-kind institution on the front lines of the world epidemic of diabetes, leading the battle to conquer diabetes in all of its forms through cutting-edge research and innovative approaches to clinical care and education.
Mission: To improve the lives of people with diabetes and its complications through innovative care, education, and research that will lead to prevention and cure of the disease.
Materials: Joslin Center offers a variety of publications for patients and professionals.
Department of Health and Human Services
National Institutes of Health (NIH)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is the Government’s lead agency for diabetes research. The NIDDK operates three information clearinghouses of potential interest to people seeking diabetes information and funds six Diabetes Research and Training Centers and eight Diabetes Endocrinology Research Centers.
1 Information Way
Bethesda, MD 20892-3560
Phone: 1-800-860-8747
Fax: 703-738-4929
Email: ndic@info.niddk.nih.gov
Internet: www.diabetes.niddk.nih.gov
Mission: To serve as a diabetes information, educational, and referral resource for health professionals and the public. NDIC is a service of the NIDDK.
Materials: Diabetes education materials are available free or at little cost. Literature searches on myriad subjects related to diabetes are provided. NDIC publishes Diabetes Dateline, a quarterly newsletter.
The National Diabetes Information Clearinghouse (NDIC) is a service of
the National Institute of Diabetes and Digestive and Kidney Diseases
(NIDDK). The NIDDK is part of the National Institutes of Health of the
U.S. Department of Health and Human Services. Established in 1978, the
Clearinghouse provides information about diabetes to people with
diabetes and to their families, health care professionals, and the
public. The NDIC answers inquiries, develops and distributes
publications, and works closely with professional and patient
organizations and Government agencies to coordinate resources about
diabetes.
Publications produced by the Clearinghouse are carefully reviewed by both NIDDK scientists and outside experts.
This publication is not copyrighted. The Clearinghouse encourages users
of this publication to duplicate and distribute as many copies as
desired.
2 Information Way
Bethesda, MD 20892-3570
Phone: 1-800-891-5389
Fax: 703-738-4929
Email: nddic@info.niddk.nih.gov
Internet: www.digestive.niddk.nih.gov
Mission: To serve as a digestive disease informational, educational, and referral resource for health professionals and the public. NDDIC is a service of NIDDK.
Materials: Educational materials about digestive diseases, available free or at little cost. Literature searches on a myriad of subjects related to digestive diseases are also provided. NDDIC publishes Digestive Diseases News, a quarterly newsletter.
3 Information Way
Bethesda, MD 20892-3580
Phone: 1-800-891-5390
Fax: 703-738-4929
Email: nkudic@info.niddk.nih.gov
Internet: www.kidney.niddk.nih.gov
Mission: To serve as a kidney and urologic disease informational, educational, and referral resource for health professionals and the public. NKUDIC is a service of NIDDK.
Materials: Educational materials on kidney and urologic diseases are available free or at little cost. Literature searches on a myriad of subjects related to kidney and urologic diseases are provided. NKUDIC publishes Kidney Disease Research Updates and Urologic Disease Research Updates, a quarterly newsletter.
One Diabetes Way
Bethesda, MD 20814-9692
Phone: 1-800-438-5383
Fax: 703-738-4929
Email: ndep@mail.nih.gov
Internet: www.ndep.nih.gov
Mission: To improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent or delay the onset of diabetes.
Materials: Diabetes education materials are available free or at little cost.
3 Kidney Information Way
Bethesda, MD 20892
Phone: 1-866-4-KIDNEY or 866-454-3639
Fax: 301-402-8182
Email: nkdep@info.niddk.nih.gov
Internet: www.nkdep.nih.gov
Mission: NKDEP is an initiative of the National Institutes of Health, designed to reduce the morbidity and mortality caused by kidney disease and its complications.
NKDEP aims to raise awareness of the seriousness of kidney disease, the importance of testing those at high risk (those with diabetes, high blood pressure, or a family history of kidney failure), and the availability of treatment to prevent or slow kidney failure.
Materials: Educational materials about kidney disease, available free or at little cost.
1 WIN Way
Bethesda, MD 20892-3665
Phone: 1-877-946-4627 or 202-828-1025
Fax: 202-828-1028
Email: win@info.niddk.nih.gov
Internet: win.niddk.nih.gov/notes/index.htm
Mission: To address the health information needs of individuals through the production and dissemination of educational materials. In addition, WIN is developing communication strategies for a pilot program to encourage at-risk individuals to achieve and maintain a healthy weight by making changes in their lifestyle.
Materials: Fact sheets, brochures, reprints, consensus statements, and literature searches on weight control, obesity, and weight-related nutritional disorders. WIN’s semiannual newsletter, WIN Notes, provides health professionals with the latest research findings and progress in the WIN program.
Diabetes Research and Training Centers (DRTCs)
Diabetes Endocrinology Research Centers (DERCs)
Mission: The NIDDK supports two types of centers to foster diabetes research: Diabetes Research and Training Centers and Diabetes Endocrinology Research Centers. These centers facilitate progress in research by providing shared resources to enhance the efficiency of biomedical research and foster collaborations within and among institutions with established, comprehensive bases of research relevant to diabetes mellitus. They focus on basic and clinical research. In addition, the DRTCs provide substantial support for cores and pilot and feasibility projects directed at prevention and control of diabetes and translation of research advances into clinical practice.
Materials: Individual centers produce a variety of diabetes education materials. For information about publications and programs, contact the individual centers listed below.
National Eye Institute (NEI)
National Eye Health Education Program (NEHEP)
2020 Vision Place
Bethesda, MD 20892-3655
Phone: 1-800-869-2020 (for health professionals only) or 301-496-5248
Fax: 301-402-1065
Email: 2020@nei.nih.gov
Internet: www.nei.nih.gov or www.nei.nih.gov/nehep/ded.asp
Mission: To promote public and professional awareness of the importance of early diagnosis and treatment of diabetic eye disease. NEHEP is a partnership with various public and private organizations that plan and implement eye health education programs targeted to a variety of high-risk audiences.
Materials: NEI produces patient and professional education materials related to diabetic eye disease and its treatment, including literature for patients, guides for health professionals, and education kits for community health workers and pharmacists. The following titles focus on diabetic eye disease: Educating People with Diabetes (kit), Information Kit for Pharmacists, and Ojo con su Vision (Watch Out for Your Vision) (in Spanish).
National Heart, Lung, and Blood Institute (NHLBI) Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
TTY: 240-629-3255
Fax: 240-629-3246
Email: NHLBIinfo@nhlbi.nih.gov
Internet: www.nhlbi.nih.gov
Mission: To provide information and respond to inquiries related to the prevention and treatment of heart, lung, blood, and sleep disorders.
Materials: Patient education and professional materials are available on numerous topics, including cholesterol, high blood pressure, asthma, blood disease, heart disease, heart attack, exercise, obesity, lung disease, and sleep disorders. Treatment guidelines for health professionals are available on cholesterol, high blood pressure, obesity, and asthma. Serial publications Heart Memo, which provides program updates about cholesterol, high blood pressure, and heart attack, and Asthma Memo, which describes the activities of the National Asthma Education and Prevention Program, are available only online.
National Institute of Dental and Craniofacial Research/
National Oral Health Information Clearinghouse (NOHIC)
1 NOHIC Way
Bethesda, MD 20892-3500
Phone: 301-402-7364
Fax: 301-480-4098
Email: nidcrinfo@mail.nih.gov
Internet: www.nidcr.nih.gov
Mission: To serve as a resource for patients, health professionals, and the public who seek information about general oral health topics and the oral health of special care patients: people with genetic or systemic disorders that compromise oral health, people whose medical treatment causes oral problems, and people with mental or physical disabilities that make dental hygiene difficult. A service of the National Institute of Dental and Craniofacial Research, NOHIC gathers and disseminates information from many sources, including voluntary health organizations, educational institutions, Government agencies, and industry.
Materials: NOHIC provides a variety of services to help patients and professionals obtain information including patient and professional educational materials.
Centers for Disease Control and Prevention (CDC)
National Center for Chronic Disease Prevention and Health Promotion
Division of Diabetes Translation
Mail Stop K-10
4770 Buford Highway, NE.
Atlanta, GA 30341-3717
Phone: 1-877-CDC-DIAB (1-877-222-3422)
1-800-CDC-INFO (1-800-232-4636)
TTY: 1-888-232-6348
Fax: 301-562-1050
Email: diabetes@cdc.gov
Internet: www.cdc.gov/diabetes
(home page includes fact sheets, statistics, publications, and information about state diabetes prevention and control programs)
Mission: To reduce the burden of diabetes in the United States by planning, conducting, coordinating, and evaluating Federal efforts to translate promising results of diabetes research into widespread clinical and public health practice.
Materials: CDC distributes several publications including a patient guide for people with diabetes (available in English and Spanish) and the eight-page National Diabetes Fact Sheet: National Estimates and General Information on Diabetes in the United States. State-based diabetes prevention and control programs develop and maintain local programs and produce materials on diabetes for the general public and health professionals.
Indian Health Service (IHS)
Indian Health Service National Diabetes Program
5300 Homestead Road, NE.
Albuquerque, NM 87110
Phone: 505-248-4182 or 505-248-4236
Fax: 505-248-4188
Email: diabetesprogram@mail.ihs.gov
Internet: www.ihs.gov/medicalprograms/diabetes/index.asp
Mission: To develop, document, and sustain a health effort to prevent and control diabetes in American Indian and Alaska Native communities.
Materials: IHS makes many diabetes resources available, including the Diabetes Curriculum Packet, nutrition education materials, general diabetes information, professional resources, training programs, posters, audiovisual materials, and other patient education materials. Educational materials are directed toward American Indian and Alaska Native populations, and some materials are available at a lower reading level. Materials can be obtained upon request from the IHS National Diabetes Office.
Office of Minority Health Resource Center (OMH-RC)
P.O. Box 37337
Washington, DC 20013-7337
Phone: 1-800-444-6472
Fax: 301-251-2160
Email: info@omhrc.gov
Internet: www.omhrc.gov
Mission: To improve the health of racial and ethnic populations through the development of health policies and programs. OMH-RC is the largest resource and referral service on minority health in the Nation.
Materials: OMH-RC offers information, publications, mailing lists, database searches, referrals, and more for African-American, Asian, Hispanic/Latino, American Indian/Alaska Native, and Pacific Islander populations. OMH-RC publishes the newsletters Closing the Gap and HIV Impact.
Professional and Voluntary Associations
American Association of Clinical Endocrinologists (AACE)
1000 Riverside Avenue, Suite 205
Jacksonville, FL 32204
Phone: 904-353-7878
Fax: 904-353-8185
Internet: www.aace.com
Mission: To provide an avenue for the study of the scientific, social, political, and economic aspects of endocrinology consistent with maintaining the highest levels of patient care and the highest standards of medical practice. AACE is an international organization representing physicians devoted to enhancing the field of clinical endocrinology.
Materials: AACE publishes a peer-reviewed scientific journal, Endocrine Practice. The organization also publishes The First Messenger newsletter and other timely publications, such as practice guidelines, to keep members abreast of scientific developments and news.
American Association of Diabetes Educators (AADE)
100 West Monroe, Suite 400
Chicago, IL 60603
Phone: 1-800-338-3633 or 312-424-2426
Fax: 312-424-2427
Diabetes Educator Access Line: 1-800-TEAMUP4 (1-800-832-6874)
Email: aade@aadenet.org
Internet: www.diabeteseducator.org
Mission: AADE is a multi-disciplinary organization of more than 10,000 health professionals dedicated to advocating quality diabetes education and care.
Materials: AADE publishes The Diabetes Educator, a bimonthly journal for multidisciplinary members of the diabetes health care team. The journal publishes the latest diabetes education research and provides valuable teaching tools and techniques. AADE also produces the most comprehensive diabetes education resource, A Core Curriculum for Diabetes Education, now in its third edition. AADE members receive AADE News, providing association-related news and practice information, nine times per year. Call AADE for a complete listing of all educational products, including publications, videotapes, and patient materials, available through the association.
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1-800-DIABETES (1-800-342-2383member department only)
Fax: 703-549-6995
Email: askada@diabetes.org
Professional Membership Email: membership@diabetes.org
Internet: www.diabetes.org
Mission: To prevent and cure diabetes and to improve the lives of everyone affected by diabetes.
Materials: The American Diabetes Association publishes many books and resources for health professionals and people with diabetes. In addition, it publishes Diabetes Forecast, a monthly magazine for people with diabetes, and Diabetes, Diabetes Care, and Diabetes Spectrum, which are professional journals. For further details and ordering information on ADA’s publications, contact the American Diabetes Association, Order Fulfillment Dept., P.O. Box 930850, Atlanta, GA 31193-0850, 1-800-232-6733; or see store.diabetes.org/ on the Internet.
National Call Center
(Part of the American Diabetes Association)
Our trained staff at 1-800-DIABETES (1-800-342-2383) is dedicated to answering thousands of calls and e-mails a day from people with diabetes, as well as their families, friends and health care professionals. To be a source the public can count on, the National Call Center is available Monday through Friday from 8:30 a.m. to 8:00 p.m. Eastern time to provide support, encouragement, and education on diabetes management through a variety of free pamphlets and brochures.
American Dietetic Association (ADA)
120 South Riverside Plaza, Suite 2000
Chicago, IL 60606-6995
Phone: 312-899-0040 or 1-800-877-1600 or 1-800-877-0877
Fax: 1-800-899-1976
Email: knowledge@eatright.org
Internet: www.eatright.org
Mission: To promote optimal nutrition and well-being for all people by advocating for its members.
Materials: The American Dietetic Association publishes a monthly professional journal, The Journal of the American Dietetic Association, and a monthly newsletter, ADA Courier. In addition, it publishes many books and other resources for consumers and professionals.
Diabetes Care and Education Dietetic Practice Group (DCE)
(a subgroup of the American Dietetic Association)
For information, contact the American Dietetic Association using the above information.
Mission: To promote quality nutrition care and education. As leaders in the diabetes community, DCE members make positive contributions to people with diabetes and their families, the DCE membership, and other professional organizations and industry.
Materials: Professional and consumer publications are created by DCE in conjunction with both the American Dietetic Association and the American Diabetes Association. Materials can be ordered through either association. A bimonthly newsletter is published for members.
Consumer Nutrition Hotline
(part of the American Dietetic Association)
Phone: 1-800-366-1655
Internet: www.dce.org
Mission: A toll-free consumer nutrition hotline that provides a referral service to registered dietitians.
American Urological Association Foundation (AUAF)
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 1-800-828-7866 or 410-689-3990 or 1-866-746-4282 x 3750
Email: education@auanet.org
Internet: www.auafoundation.org or www.urologyhealth.org
Mission: To provide research grants, patient and public education, Government relations, and patient support group activities.
Materials: AUAF publishes an informational brochure about the organization; Family Urology, a quarterly newsletter; and several patient education brochures.
American Podiatric Medical Association (APMA)
9312 Old Georgetown Road
Bethesda, MD 20814-1621
Phone: 301-571-9200
Fax: 301-530-2752
Email: askapma@apma.org
Internet: www.apma.org
APMA Foot Care Information Center
Phone: 1-800-FOOT-CARE (1-800-366-8227)
Mission: To serve the professional needs and promote the standards and ethics of doctors of podiatric medicine and their services to the public.
Materials: APMA publishes a monthly magazine, APMA News; a monthly journal, Journal of the American Podiatric Medical Association; and a diabetes-specific booklet, Your Podiatric Physician Talks About Diabetes, along with many other brochures on various foot health topics.
Diabetes Action Research and Education Foundation
426 C Street, NE.
Washington, DC 20002
Phone: 202-33-4520
Fax: 202-558-5240
Email: daref@diabetesaction.org
Internet: www.diabetesaction.org
Mission: To support and promote education and scientific research to enhance the quality of life for everyone affected by diabetes.
Materials: The foundation publishes the booklet Managing Your Diabetes: Basics and Beyond.
Diabetes Exercise and Sports Association (DESA)
8001 Montcastle Drive
Nashville, TN 37221
Phone: 1-800-898-4322
Fax: 615-673-2077
Email: desa@diabetes-exercise.org
Internet: www.diabetes-exercise.org
Mission: To enhance the quality of life for people with diabetes through exercise.
Materials: The Challenge is DESA’s quarterly newsletter. DESA also provides pamphlets on diabetes and exercise.
Endocrine Society
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815
Phone: 301-941-0200
Fax: 301-941-0259
Email: endostaff@endo-society.org
Internet: www.endo-society.org
Mission: To promote excellence in research, education, and the clinical practice of endocrinology; foster a greater understanding of endocrinology among the general public and practitioners of complementary medical disciplines; and promote the interests of all endocrinologists at the national scientific research and health policy levels of Government.
Materials: The Endocrine Society publishes four professional journals: Endocrinology, The Journal of Clinical Endocrinology and Metabolism, Endocrine Reviews, and Molecular Endocrinology. Another publication, The Clinical Endocrinology Update Syllabus, provides practicing endocrinologists with a review of the diagnosis and management of all major components of contemporary endocrinology.
Joslin Diabetes Center
One Joslin Place,
Boston, MA 02215
Phone: 1-800-JOSLIN or 1-800-567-5461 or 1-617-732-2400
Email: Contact Us
Internet: www.joslin.org
Mission: To improve the lives of people with diabetes and its complications through innovative care, education, and research that will lead to prevention and cure of the disease.
Materials: Joslin Center publishes the quarterly magazines
Juvenile Diabetes Research Foundation International (JDRF)
120 Wall Street, 19th floor
New York, NY 10005-4001
Phone: 1-800-533-2873 or 212-785-9500
Fax: 212-785-9595
Email: info@jdf.org
Internet: www.jdf.org
Mission: To support and fund research to find a cure for diabetes and its complications. The Juvenile Diabetes Research Foundation International (JDRF) is a nonprofit, voluntary health agency, and the world’s leading charitable funder of research to find a cure for diabetes.
Materials: JDRF publishes the quarterly magazines Countdown and Countdown for Kids, as well as a series of patient education brochures about type 1 and type 2 diabetes and also a research e-newsletter to provide the latest information about research on type 1 diabetes and its complications.
National Certification Board for Diabetes Educators (NCBDE)
330 East Algonquin Road, Suite #4
Arlington Heights, IL 60005
Phone: 847-228-9795
Fax: 847-228-8469
Phone requests for exam applications: 913-541-0400
Email: info@ncbde.org
Internet: www.ncbde.org
Mission: To promote excellence in the field of diabetes education through the development, maintenance, and protection of the Certified Diabetes Educator (CDE) credential and the certification process.
Materials: NCBDE publishes a brochure that contains information about eligibility requirements and the certification examination.
National
Complications have been established.
National Kidney Foundation, Inc. (NKF)
30 East 33rd Street
New York, NY 10016
Phone: 1-800-622-9010 or 212-889-2210
Fax: 212-689-9261 or 212-779-0068
Email: info@kidney.org
Internet: www.kidney.org
Mission: To prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. Through its 51 affiliates nationwide, NKF conducts programs in research, professional education, patient and community services, public education, and donation. The work of NKF, a major voluntary health organization, is funded primarily by public donations.
Materials: NKF has several publications including American Journal of Kidney Diseases, Journal of Renal Nutrition, Advances in Renal Replacement Therapy, Journal of Nephrology Social Work, Renalink, NKF MD, NKF Family Focus, Transplant Chronicles, and For Those Who Give and Grieve. Additional patient and public education materials are also available.
Pedorthic Footwear Association (PFA)
7150 Columbia Gateway Drive, Suite G
Columbia, MD 21046-1151
Phone: 410-381-7278 or 1-800-673-8447
Fax: 410-381-1167
Internet: www.pedorthics.org
Mission: To increase knowledge and understanding of pedorthics and its practice, encourage development of new pedorthic tools and techniques, and foster the professional development of pedorthic practitioners.
Materials: PFA publishes the bimonthly magazine Current Pedorthics, formerly called Pedoscope; the brochures Pedorthics: Foot Care Through Proper Footwear and Diabetes & Pedorthics: Conservative Foot Care; reference guides; and manuals.
